Thursday, August 17, 2017
Monday, July 31, 2017
I’ve always had allergies. When I was a little kid they called them colds. As an adult, only time I didn’t have them was during my wonderful 19 months living at a California beach. I moved; they came back. The doctor was baffled. They seemed too bad to be allergies.
Then I moved to TX. And for the first time, the whole nasal thing got infected. Antibiotics. They cut the infection, not the endless sneeze/cough, runny nose.
The second year, it was worse. So much coughing and sneezing I couldn’t drive. The doctor said he'd send two scrips - each day I'd take fewer pills, and in a week I'd be done. I got two tiny boxes.
When I unwrapped the fashionable “pacs” the first was a Prednisone compound. No. Uh-uh. Back in the box. But I was miserable, so I took them. The antibiotic was amazing. The steroids were not. The coughing kept on until the tissue showed a few traces of blood with the cough. After several phone calls, I got the promised cough syrup. Not enough help. The doctor’s office called and asked if the meds worked. I told them I was at the same place I would have been without the meds.
Mom used to say after disappointing medicine
"Either this stuff is no good, or I would have died without it." Hmm.
About a week after the steroids were all gone, the Surprises began.
Suddenly I got red areas sort of like athletes foot ON my palms. (I have blepharitis- Try taking care of your eye infection with that on your palms! Put on clotrimazole.)
Same week, I had too many errand in the hot, hot car and no place to park in the shade. When I got home, the sweaty area at the edges of my hair, and on my neck itched wildly. I got patches of streaky itchy hives and even a couple of bumps. The next day, I still had big itchy red areas when I woke up.
I remembered a dermatologist’s words when I was very young:
..."I think you’re allergic to your own sweat."
I combed the web. New words:
http://emedicine.medscape.com/article/1049978-overview?the > Dermatology
Updated: Apr 04, 2017 Author: Robert A Schwartz, MD, MPH;
“Cholinergic urticaria is one of the physical urticarias brought on by a physical stimulus. Although this stimulus might be considered to be heat, the actual precipitating cause is sweating.”
I changed my routine, stayed in during most of the day .But I had to make a decision:
I’m due for the next Prolia injection. Prolia admits even on the web site, that it CAN affect the immune system. Feeling nervous, I cancelled the Priola for now.
Steroids should slow the immune system when it over-reacts to something simple. But HOW long until the immune system is BACK TO NORMAL?,
Go back to the doctor? I don't want to be in any med waiting rooms with sick folk. I wear a med mask to the grocery store. Scared? I didn't go to Starbucks for a month! And when I did get there, suddenly a big group came in. I was too freaked out to stay
Home –lifestyle? I can't get the indoor humidity below the upper 50s, which is not good for respiratory problems. And I itch.
Friday, July 21, 2017
Ever since I moved here, I've had a silent, internal battle with the yard maintenance crew. More than half of every Friday, their machinery, some of it oversized scatters dirt and whatever pollen for my allergies to inhale. So I stay indoors.
This morning, after a month of scary allergies and scary meds, I decided I had to walk. So I rushed out to try for one lap before the yard guys would arrive. I was almost back when I saw a friend coming with her walker, and heard the hated sound of a yard man starting some machine.
When friend and I started to chat, the machine was silent. She went on. He didn't start his machine. We exchanged Good Mornings, and he didn't start the machine until put my allergy mask on and was well past him. After I got inside, I was sure he waited out of courtesy for us. One kindness like that can change my view for the day. (And once before one of the crew had shut down a machine when I approached with a tissue over my nose. Sad how I forget those kind gestures.
Monday, July 17, 2017
Tuesday, July 11, 2017
My allergies were calm this morning just long enough for a question to rear its ugly head.
I've been checking the calendar so I won't miss the Prolia inj at the end of this month.
And I actually want) to take the next bone density test, but secretly plan it for after Prolia inj #4 has had a chance to work.
The question I shouldn't face right now is: What if that right hip isn't better?
I've always been sure that I believe in Prolia. But there are plenty of things patients and doctors believe in that turn out to be.....not infallible.) I like Prolia, because I am impressed with how it works in the body. Short version - it does its work and then goes away.
The pills on the other hand grip onto one's bones and may be hard to dislodge. Like Bondo on a hole in your car (ask your boyfriend. He may give you a lecture on cars, but he'll probably like that better than a plate of pancakes. Okay, enough on Bondo.)
The doctor has already hinted that because I already had osteoporosis when I started Prolia, I may have to take more Prolia than these four shots. Will I do that?
This question will not be answered until Prolia shot 4 has had a chance to act, and the density test results are out. Probably in August.
Now my fear of authority figures is in play. He's the authority figure here. I feel guilty if I wait for the density test. And I still tend to think that if the doctor wants more Prolia, I'll have no choice. That can be a dangerous attitude for a patient to get.
This was going to be a 3-sentence post. Oops. At this moment I don't know. If the hip isn't better, I may agree to more Prolia. Not because he's an authority figure, but because I trust him and want him as my doctor.
I still remember that first day in his waiting room when the woman said, "You have the good doctor!"
Friday, June 30, 2017
The other day reporting to a hospital for a chest x-ray (for allergies, big cough) I remembered I will be getting the two-year bone density scan that Medicare allows to find out if the Prolia I take actually works.
I kind of remembered the entry area and felt it's the same place I got my original density scan. (Can't resist telling people that only my hips were scanned because there's lumbar fusion metal in my spine.)
Seems like the very same day I decided this was the place, I also ran into an online recommendation that we do go to the same place for a second scan. This makes perfect sense to me - same room, probably same apparatus, same method and so on. Most important to me: May be the same Radiologic Tech as before!
The original scan of my right hip (the one thus diagnosed with osteoporosis) was a very uncomfortable process. I just lay there and took it til it was over, then the Tech had no idea why I felt so uncomfortable. I want more info on why that happened. Especially if it hurts this next time.
As I've mentioned, I have a funny hip the won't do everything limber people do.
I want my next (maybe final) Prolia before the scan. Let Prolia give its best shot to this hip; then we'll see.
Saturday, June 17, 2017
Saw the doctor yesterday. He told me that Prolia is a two-year program. I decided not to worry about it. Then he said since I had osteoporosis when I started, I might need Prolia more than this two years. Then I DID decide to worry about it.. But so far, so good.
But is it working? He will send me for a 2nd year scan. He had no definite answer on why the first scan was so uncomfortable. I do know I have a funny hip....will ask tech during next scan.
I told him I had no effects from the fall to my knees when the kid in the pickup was crowding me up against the sidewalk a couple of weeks ago. I need the scan anyway.
The very weird discoloration after getting overheated, last week and the "full-body warm flashes" also seem to him normal (not sure if that's for my age instead of Tamox.)
I'll check with his office next week to see if I'm to get the bone scan before this 4th Prolia, or after. It may not matter either way. Am kind interested to see if that right hip is significantly better.
I wish you health.